Two Story Cottage

Got Milk? Nope, not here.

Dear Friends,
You never know what you are going to get here, do you?   I’m branching away from home decor today to stomp my feet about my son’s potential food allergies.  Actually,  I’m really seeking advice from those that have been there.  Or maybe it’s both.

Poor Reid has had a host of health problems lately and after blood-work and some other tests it seems that he has some sort of food allergy.   Apparently, there is a hierarchy of food allergies so we have to eliminate food groups for three weeks each to see what the potential source of the problem is.

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Cow print by Cari Humphry: Etsy shop ArtPaperGarden : 7 by 7 print is $15

First up.  Dairy.  Did I mention that Reid loves milk more than life itself?   Yeah.  Or that cheese pizza is his favorite thing in the world?  Uh huh.   And at the tender age of almost three, explaining that he suddenly can’t have these is the equivalent of alien-speak.   I’m preparing for World War III.

The best part is nobody thinks he has a dairy allergy.  It is most likely celiac (gluten) because it runs in my husband’s side of the family.    So, we take away milk products , cheese, and yogurt for three weeks even though he probably has a gluten allergy.  Makes sense to me.  At least gluten is next on the list.

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I’m seeking advice from any non-dairy people out there.  What milk substitutes do you use?  Or cheese substitutes?

And you non-gluteners are ruling the world these days so I know you have advice too.

We are waiting to start this madness until after his birthday next week.  Didn’t you know? Once you turn three, we take all your food away. It’s a tough life, kid.

Signed,

Help!!

Comments

  1. Oh Erin I feel for you….and for Reid!! I have an autistic son aged 14 and we went through the whole food elimination thing when he was younger. Not allergic to anything but very intolerant to gluten, some forms of sugar, dairy and a host of others. If you/professionals think its gluten, can you not do that first to save Reid a whole lot of heartache on the dairy front? Also, dairy takes much longer to leave the system but gluten is faster so makes sense to do it first. Just a few thoughts….. GOOD LUCK! xxx

    • Laura, thanks for stopping by! I think the doctor thinks he could have both which is why we are doing dairy first. I just don’t want it to be both so I’m pretending it is just gluten. :) Reid has sensory processing disorder which does have to do with the central nervous system like autism. Interesting – the whole brain/gut relation thing. Thanks for your support!! :)

  2. Tabitha Teeter says:

    Almond milk, coconut milk and cashew milk. They are easy to make in your blender and strain with paint strainer/nut milk bag or cheesecloth. My kids prefer almond milk and taste of almond cheddar to other “cheeses”. There is a cream cheese you can make from cashews. http://Www.spunkycoconut.com has dairy free recipes. Elana’s Pantry and Real Sustenance are dairy free, too.

    Nutritional yeast can give you a cheesy taste when mixed in or sprinkled on popcorn. Earth Balance butter is yummy until you can use ghee.

    Also watch out because some imitation cheese shreds are lactose free only. They got me with that. HTH. It’s weird that they aren’t starting with gluten with your family history. If you’re pretty sure, you can push to flip those around. You know your kid.

    • Okay, I am learning all kinds of stuff today! Thanks for the info. I’m tempted to not do the dairy but I think the doctor’s thinking is that he could have both “allergies”. Either way, I’m arming myself with as much information as I can get. Thanks for your help!

  3. My sister discovered a few years ago that she is lactose intolerant, and she loved, loved, loved cheese more than anyone I know. We learned about a year ago that Kraft Naturals cheese blocks don’t have any lactose, and I have been told that several other natural cheese brands (ex: Sargento, Cracker Barrel Natural, etc…) don’t either. It will say right on the package (“0 g of lactose per serving”). If lactose turns out to be the issue, this is an easy way to still let him enjoy “regular” cheese. Hope that helps. Also, I know this isn’t really the most gourmet pizza, but Totino’s pizzas (& pizza rolls) don’t have lactose either, and there are several other brands that are also dairy-free, ex: http://frozen-pizza.findthebest.com/d/c/Dairy-.-Free. Hope that helps!

    • Thanks for the info! I don’t know right now if it is lactose or the milk protein but either way I am arming myself with info. I’m hoping it is none of the above but I appreciate the advice for easy, convenience foods!!

  4. My grandchildren are allergic to dairy. They love almond milk.

  5. My one year old has a sensitivity to grocery store milk. We started getting milk delivered to our home from a local dairy and she doesn’t have the sensitivity issues anymore. The man from the dairy says the dairy doesn’t kill as many of the good bacteria that helps you digest the milk when the dairy pasteurizes the milk. My husband doesn’t drink milk and he really likes coconut milk. A lot of people with dairy issues also have issues with soy. Thankfully cheese and yogurt don’t bother my baby or my husband. Good luck!

  6. Lactose Free Milk
    Rice Milk
    Almond Milk
    Lactose Free Cheese (many varieties available)
    Almond Milk Ice Cream
    Rice Dream (faux ice cream)
    Coconut Milk Ice Cream
    Dairy Milk (straight from the farm)

    If you snack on pre-packaged foods check labels. Many of these have dairy in them. Shop at more specialty sections/natural markets of the grocery store to get a better variety. Or natural grocers.

    If it’s gluten that he can’t tolerate: Udi’s has some of the best breads, rolls, cakes, pizza dough, etc. Most like regular bread texture and flavor.

    Here’s a link to gluten free foods – easy to make/bake
    http://glutenfreegoddess.blogspot.com/2007/01/cooking-baking-gluten-free-tips-for.html

    Also, since his system may be acidic from the dairy and wheat give him foods that are high alkaline: These will change his PH in his blood. He’ll feel so much better!
    kale
    cucumber
    celery
    spinach
    avocado
    capsicum (yellow pepper)
    bell pepper (red/sweet pepper)
    green pepper
    broccoli

    Best of luck! I’m constantly managing the diet for my family. Once you get into the groove of it it will run smoothly. You will know the signs ahead of time and now how to deal with issues when they flare up.

    XO
    ~K

    • Thanks, Kolein! I may use you as a resource! By going with an integrative pediatrician we are definitely going the more natural route. I’m nervous but a little excited about all of the possibilities.

      Reid doesn’t tolerate a lot of foods well. Even though he is almost 3, his sensory processing disorder causes a lot of gagging and throwing up with foods that bother him texture-wise. I’m hoping though that if we get his stomach feeling good, he will not have such a response with food.

      Thanks again!!

  7. Hubs likes Silk Soy Milk and Rice Dream. But, the Rice Dream really didn’t have much protein to sustain him through lunch. I like Soy Slender in my smoothies. ANd also really like the Almond Milk ;-)

    There are tons of cheese substitutes out there, I don’t know that we have a favorite here.

    Let me know if you want help in the Gluten-free department. We are addicted to Glutino foods.

    • I like Almond Milk too. Today I started adding a little to his regular milk. I’m hoping he will grow to like it. He seemed fine with it today!

      Didn’t know you guys were following gf or df diets!

  8. I agree with trying gluten free first! Let me know if you need any help with the sensory processing disorder! Work with babies with that disorder weekly!

  9. Shauna Barnes says:

    You may have more answers by now, but I’m a Mama with Celiac with a 21 mo old Celiac son. There is a simple blood screen that can be done to give you an idea about gluten intolerance. My little guy took a few months to really improve on a gluten-free diet, so it might give you a quicker answer! Good luck!

    • We are supposed to do that at the next appointment I think! I know that some don’t test + for it but are still sensitive. We will find out. Thanks for letting me know that it took time!!!

  10. Hugs! You can do this! My dd was two when we first suspected intolerances/allergies. She was majorly regressing and we thought it we were looking at Autism. But as we took her off gluten and dairy, she gradually got better. she is 8 yrs old now and doing wonderfully.
    My favorite books are The Unhealthy Truth, O’Brien and Healing the New Childhood Epidemics, Bock…highly recommend!!!!
    As far as testing dairy: casien and gluten are very similar in their makeup…in fact, many people were can’t tolerate gluten also have issues with dairy, eggs, oats, and soy as well. (because the body recognizes it as gluten)My daughter did, at first. She can now can anything but gluten and d dairy. Hers is genetic.
    Our favorites are:
    almond milk for drinking, cereal type stuff.
    coconut milk (canned) for making icecream and baking anything with chocolate, lol.
    daiya cheeze is by far our favorite cheeze sub.
    Making almond milk at home is super easy.
    my fave sites are gluten free goddess, elanas pantry, the spunky coconut and esp nourishing meals.
    It is hard to make these changes, but so rewarding in the end. Our whole family has benefited–we eat way more healthy than we would have otherwise; in fact, going gf healed my thyroid and I am now off meds.
    There are SO many more options than even 6 yrs ago!
    Sorry this is so spastic, lol. Kiddos all over the mama!

    • Thank you SO much for all of the resources!! We are so new to this and it is overwhelming. I know how much easier the gluten thing is now though than several years ago.

      I may contact you if I need further help!! Thanks again! :)

  11. ok, wow…note to self, read comment before submitting! typos, much?

  12. My son is 12 and was diagnosed with dairy and egg allergies at 6 months old. His allergies were very intense – even if he had skin contact (not even eating it) he would break out in terrible hives/rash. Thankfully he has never tasted pizza or real ice cream so he thinks they’re gross which makes me laugh. We go to the allergy clinic at Children’s Hospital of Wisconsin. In the last year he had two very interesting in-office food challenges – dairy in product and egg in product where “in product” means in a baked good (ie bread, muffins, cake, cookies, etc). This concept/testing is relatively new (maybe in the last 5-ish years). The thinking is that if the allergen is completely combined with other ingredients and then baked for a length of time; this combination will breakdown the protein allowing my son’s system to tolerate it. By continually keeping these types of foods in my son’s diet the hope is that his body will eventually recognize the allergen and say “hey I had milk protein over here and was ok-I can process milk protein in this other form”. Of course his body doesn’t actually talk, but you get my gist-lol. It’s important that you can’t identify the allergen in the final product. For example a cheese biscuit would not work because you would still be able to see/taste the cheese. I am very interested to see what his next round of allergy testing this summer is going to look like. This has been absolutely life changing to be able to eat any bread at a restaurant or friend’s house (as long as it does not have a egg wash on it which is pretty rare). It has been so much fun to watch him try foods for the first time and see how much he loves them with his eyes lighting up. While we have been able to make changes to recipes and they can still taste decent, there is just something about the real deal. He LOVES muffins, cake, cookies and donuts. We still have to be careful about frosting or glazes. Once he passed both the dairy and egg in product challenges he was then able to eat foods that had both dairy and egg in product.

    • Wow, Heather. You guys dealt with a lot for many, many years! That is so interesting! I have heard of something similar with a friend who has a son with a nut allergy. They are giving him trace amounts of nuts in an experimental setting.

      Once we remove the gluten I’m hoping to bring the dairy back in just like you were referring to. I’m not going to give him milk and I’ll follow protocol but it would great if we didn’t have to worry about it in things. I think Reid’s soy allergy is more severe (an allergy rather than a sensitivity) because he broke out from touching soy cheese. We are getting tested for that when we get tested for the other things. I can only imagine what it would be like to try bread for the first time!!!!! Wow! I’m so glad you stopped by and thanks so much for your comment.

Trackbacks

  1. [...] Friends, Can you believe it has already been three weeks since Reid’s dairy elimination started?  Oh, wait, you weren’t counting down like I was?  Silly me.  In any case, I swear time [...]

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