Two Story Cottage

Food Intolerances Part II {otherwise known as “puke talk”}

Dear Friends,
Can you believe it has already been three weeks since Reid’s dairy elimination started?  Oh, wait, you weren’t counting down like I was?  Silly me.  In any case, I swear time flies around here.  On the one hand it seems like it has been cold, dark and raining for eternity.  On the flip side, I’m pretty sure it was just Valentine’s Day.   Oops – it might be time to take down those heart decorations.

Everyone was so helpful when I mentioned our plan to stop dairy and eventually gluten.  I got great information from you guys which made things much easier to navigate.   I mentioned that I didn’t think Reid was dairy-intolerant, but that we were trying that first as suggested by his doctor.   I was tempted to skip ahead to the gluten but I followed the “plan” set forth by the specialist.   I did pay $300 for that plan so I might as well follow it, right?

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Well, he is definitely doing a lot better than he was three weeks ago.  Maybe there is some truth to this whole dairy deal.  I know that his issue is gluten and we haven’t even eliminated it but I was surprised by the improvement I saw without the casein (milk protein).  Reid is still throwing up but switching to almond milk has clearly done great things for his digestion.  The vomiting is no longer the extreme projectile force that it was.  And the consistency is better.  I’ll leave it at that before you lose your lunch.  Puke talk is not pretty.

His bruising is not gone but is substantially better. He does still have rashes.  And rather extreme melt-downs that seem out of his control.  The snoring is better but the bad breath is still there.  He has also been having a lot of sleep trouble so I’m hoping this gluten removal will help.  Of course, I’d love for the throwing up to cease but that might be a pipe dream.  I’ll take what I can get.

Removing the dairy has been a pain but it wasn’t as hard as I thought it would be.  The almond milk has saved us.  I’d love to be able to use cheese again sparingly because it is great for hiding veggies and other things that he doesn’t tolerate.  It would be nice to do a little yogurt too because he will do smoothies with the yogurt in there.  I’m hoping we won’t have to leave dairy behind forever.

exterminate_gluten

I also read the book “The Out of Sync Child” which does a good job of breaking down sensory processing disorders.  I had put off reading it but finally buckled down.  There are many challenges that he doesn’t have which was healthy to realize.  Reid’s “sensory issues” are omni-present but he has such areas of strength that it almost balances the scales.  The sensory train is like transportation to the unknown because there are so many  routes that these disorders take.  I’m thankful that Reid has been in therapy for most of his life; our ride may be a little less bumpy as a result.

For now, we go to the doctor, listen to her evaluation, and stop all gluten.  I am ready.  I’ve got a pantry full of gluten-free items and I’m trashing a lot of other stuff that does not need to be hanging around.

Our family lifestyle has to change in order for this to work.  I’m willing to do that.  Of course, those two mornings a week that he is in school you might see me at the Krispy Kreme drive-thru.  Shhhh.

-Erin

 

Comments

  1. Food issues! I hate food issues. Do you suspect celiac disease? If he goes gluten free before he is tested for it, it becomes much more complicated if not impossible to get an accurate diagnosis. Trust me, we’ve been there and know what we are talking about. My daughters doctor refused to test her for celiac, even though I have it. Now she is gluten free on the assumption that she has it. She can’t do the gluten challenge because it makes her so sick. If celiac is a possibility, DON’T stop the gluten until he has had the proper tests. I can’t wait until medical schools and doctors catch up.

    • Hi Toni – We decided at the doctor’s office today to hold off on withholding all gluten until the testing. We are already scheduled for it so we have to wait just a bit longer. You were right on the money! I do suspect celiac as my father-in-law and sister-in-law have it. My sister-in-law never got the confirmed celiac diagnosis but has been gf for 25+ years. I do wish the medical community was more “in the know” on a lot of this stuff. I guess it pays to do research. :) Thanks for your help!

  2. So glad there has been improvement. Projectile vomit was one of the first things to go for us, too,

    There are a bunch of gluten free, casein free bloggers out there now. Thespunkycoconut.com and elanaspantry.com got us through our first days and 99% of food came out great. They are grain free now, but older posts have some grains on spunkycoconut. (We also have corn & soy issues.) If you need sweet treats or fluffier bread and are ok with some starch, RealSustenance is also awesome. HTH. Only DD and I are gf so recipes that make the other 3 happy simplify life here.

    You don’t have to hold off on the gluten for testing anymore. Spectracell does blood testing for gluten sensitivity, Celiac, and can do other foods. It’s $300 so we will wait until I need doctor certification for DD or me. For now what our bodies did after removing gluten was enough evidence. Celiac testing is pretty hit or miss. They would have to biopsy a damaged part of his intestines to confirm Celiac. Many folks have been cleared when they did have damage or inflammation elsewhere.

    Good luck. It will get easier.

    • Thanks for the resources, Tabitha! I am going to browse those tonight. And I will definitely be using them. I actually realized that Reid has possible soy issues while we were doing the dairy elimination because he tried a casein-free soy cheese and he broke out around the mouth. So, soy looks to be a no-no too.

      I am definitely going to look into the test you are referring to. Today the doctor said to wait until testing before removing the gluten. I don’t have to wait much longer but I was a little bummed because we were so ready to do it. I had planned on starting asap. I know that he may not test + for celiac because my sister-in-law didn’t and she is extremely gluten sensitive and has been for 25+ years. He is having a full GI consult done and they are going to do all of the bloodwork while he is under anesthesia. The doctor wants to eliminate the possibility of esophageal issues in addition to the food issues. I’m actually okay with it because insurance covers it more readily all bundled together like that.

      We don’t have much longer to wait so I’m trying to be patient. I just feel for him and want to make the change.

      Thanks for all of your help!!!!! :)

  3. I hate to hear about your food troubles. As a avid lover of cheese… and krispy kreme (and all food in general) intolerance give me the hibijibies.
    I had never heard of the Celiac disease until I met my husband and went through a crash course in GF cooking. Then, the food we were offered tasted like cardboard and had the texture of bricks, but luckily, someone has been working hard and things (especially bread) are getting better.
    If you’re up to advice, be careful to ease slowly into gluten free bread. I went completely gluten free when I got married (now I’m not so faithful) but still ate as much bread products as I have before. It takes you body a while to adjust to how dense Gluten Free products can be. My body put up a real fight.

    Wishing you good luck and hoping you get answers soon.

    • Thanks for the info, Crys! And you are right about the bread. I’m already realizing that we can’t just replace everything. I’m trying to do things more slowly now and really look at the labels. And you aren’t kidding – gluten free stuff is WAY better now. I used to force down GF cake at my sister-in-law’s birthday and now I’m licking the spoon.

      So glad you stopped by! :)

  4. My son did the gluten test blood panel and he was way positive for Celiacs! This was after the doctor poo-pooed the idea as way out there. Boy did he apologize! I have heard that with kids it may take a few tests to really know as they show a false negative.
    There is a website, http://crockpot365.blogspot.com/
    This has some great crockpot meals that her family has tested and most of them are gluten free.

    • OH, I LOVE the crockpot. This is great, Cecilia! And thanks for the test info too. You just can’t mess with a mother’s instinct!

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